Preliminary Program

• • Wednesday 28th November 2012
  • 17.00-17.45 Institutional welcome address

    •   Renato Balduzzi - Italian Ministry of Health (pending)
    •   Gianni Alemanno - Mayor of Rome (pending)
    •   Francesca Ratti - Deputy secretary - General of the European
        Parliament Director General (pending)
    

  • 17.45-19.30 Opening Ceremony

    •   Franca Benini - Congress President
    •   Chantal Wood - Vice President
    
    •   Giuseppe Profiti - President of Bambino Gesù Children's Hospital
    •   Franco De Conno - Honorary Director of the EAPC
    •   Alberto G. Ugazio - President of the Italian Paediatric Society
    •   Adriana Turizziani - President of the Italian Palliative Care Society
    
    •   A Family's PPC experience - Omar Leone - father
    •   Parent of child with rare disease (pending)
    •   Palliative care as children's right - Kathy Foley
    •   Ethical issues - Richard Hain
    

  • 19.30-20.30 Welcome reception
  Thursday 29th November 2012
  • 09.00 - 10.00 "Eligibility criteria"

    Moderators: Franca Benini and Guido Fanelli
    
    •   "Documents and guidelines" - Finella Craig
    •   "From theory to practice" - Ricardo Martino Alba
    •    Open Discussion
    

  • 10.00 - 10.30 Coffee Break
  • 10.30 - 12.40 "Models"

    Moderators: Joan Marston and Gianlorenzo Scaccabarozzi
    
    •   Belarus - Anna Garchakova
    •   France - Chantal Wood
    •   Germany - Benjamin Gronwald
    •   Ireland - Julie Ling
    •   Italy - Franca Benini
    •   Romania - Delia Birtar
    •   Russia - Father Alexander Tkachenko
    •   Spain - Eduardo Quiroga Cantero
    •   Switzerland - Eva Bergsträsser
    •   UK - Barbara Gelb
    •   Open Discussion
    

  • 12.40 - 14.00 Lunch and poster visit
  • 14.00 - 15.30 Working session 1 - Moderator: Eva Bergsträsser
    Working session 2 - Moderator: Julie Ling

    • 5-6 Presentations
    • Open Discussion

    
    
  • 15.30 - 16.00 Coffee Break
  • 16.00 - 17.15 "Families"

    Moderators: Richard Hain and Bruno Marino
    
    •   "Grief and bereavement" - Angela Guarino and Grazia Serantoni
    •   "Perspective and role of famillies in PPC" - Momcilo Jankovic
    •    Open Discussion
    

  
  
  Friday 30th November 2012
  • 09.00 - 10.30 "Symptoms management"

    Moderators: Chantal Wood and Nicola Pirozzi
    
    •   "Pain: new strategies for treatment" - Stefan J. Friedrichsdorf
    •   "Sleep disturbance and daily agitation in severe neurological
          conditions" - Boris Zernikow
    •   "End of life management" - Joanne Wolfe
    •    Open Discussion
    

  • 10.30 - 11.00 Coffee Break
  • 11.00 - 13.00 "Specific needs"

    Moderators: Margherita De Bac and Domenica Taruscio
    
    •   "Needs in newborns" - Umberto Simeoni
    •   "Rare Diseases" - Bruno Dallapiccola
    •   "Neonatal screening in the Tuscany region" - Giancarlo La Marca
    •   "Providing access to knowledge and training in rare diseases" - Samantha Parker
    •    Open Discussion
    

  • 13.00 - 14.00 Lunch and poster visit
  • 14.00 - 15.30 "Support and research"

    Moderators: Lizzie Chambers and Eugenio Mercuri
    
    •   "Communication and psychological support" - Ulrika Kriecbergs
    •   "Support for the care team" - Danai Papadatou
    •   "Research in PPC" - Myra Bluebond-Langner
    •    Open Discussion
    

  • 15.30 - 16.00 Coffee Break
  • 16.00 - 17.00 Working session 3 - Moderator: Boris Zernikow
    Working session 4 - Moderator: Luca Manfredini

                           
    •   4 Presentations
    •   Open Discussion

  • 17.00 - 17.30 Closing remarks

    •   Sheila Payne, Chairman EAPC
    •   Francesco Bevere, Italian Health Ministry (pending)