• Wednesday 28th November 2012
    • 17.00-17.45 Institutional welcome address
      •   Renato Balduzzi - Italian Ministry of Health (pending)
      •   Gianni Alemanno - Mayor of Rome (pending)
      •   Francesca Ratti - Deputy secretary - General of the European
          Parliament Director General (pending)
    • 17.45-19.30 Opening Ceremony
      •   Franca Benini - Congress President
      •   Chantal Wood - Vice President

      •   Giuseppe Profiti - President of Bambino Gesù Children's Hospital
      •   Franco De Conno - Honorary Director of the EAPC
      •   Alberto G. Ugazio - President of the Italian Paediatric Society
      •   Adriana Turizziani - President of the Italian Palliative Care Society

      •   A Family's PPC experience - Omar Leone - father
      •   Parent of child with rare disease (pending)
      •   Palliative care as children's right - Kathy Foley
      •   Ethical issues - Richard Hain
    • 19.30-20.30 Welcome reception
    • Thursday 29th November 2012
    • 09.00 - 10.00 "Eligibility criteria"
      Moderators: Franca Benini and Guido Fanelli

      •   "Documents and guidelines" - Finella Craig
      •   "From theory to practice" - Ricardo Martino Alba
      •    Open Discussion
    • 10.00 - 10.30 Coffee Break
    • 10.30 - 12.40 "Models"
      Moderators: Joan Marston and Gianlorenzo Scaccabarozzi

      •   Belarus - Anna Garchakova
      •   France - Chantal Wood
      •   Germany - Benjamin Gronwald
      •   Ireland - Julie Ling
      •   Italy - Franca Benini
      •   Romania - Delia Birtar
      •   Russia - Father Alexander Tkachenko
      •   Spain - Eduardo Quiroga Cantero
      •   Switzerland - Eva Bergsträsser
      •   UK - Barbara Gelb
      •   Open Discussion
    • 12.40 - 14.00 Lunch and poster visit
    • 14.00 - 15.30 Working session 1 - Moderator: Eva Bergsträsser
      Working session 2 - Moderator: Julie Ling
      • 5-6 Presentations
      • Open Discussion

    • 15.30 - 16.00 Coffee Break
    • 16.00 - 17.15 "Families"
      Moderators: Richard Hain and Bruno Marino

      •   "Grief and bereavement" - Angela Guarino and Grazia Serantoni
      •   "Perspective and role of famillies in PPC" - Momcilo Jankovic
      •    Open Discussion


    • Friday 30th November 2012
    • 09.00 - 10.30 "Symptoms management"
      Moderators: Chantal Wood and Nicola Pirozzi

      •   "Pain: new strategies for treatment" - Stefan J. Friedrichsdorf
      •   "Sleep disturbance and daily agitation in severe neurological
            conditions" - Boris Zernikow
      •   "End of life management" - Joanne Wolfe
      •    Open Discussion
    • 10.30 - 11.00 Coffee Break
    • 11.00 - 13.00 "Specific needs"
      Moderators: Margherita De Bac and Domenica Taruscio

      •   "Needs in newborns" - Umberto Simeoni
      •   "Rare Diseases" - Bruno Dallapiccola
      •   "Neonatal screening in the Tuscany region" - Giancarlo La Marca
      •   "Providing access to knowledge and training in rare diseases" - Samantha Parker
      •    Open Discussion
    • 13.00 - 14.00 Lunch and poster visit
    • 14.00 - 15.30 "Support and research"
      Moderators: Lizzie Chambers and Eugenio Mercuri

      •   "Communication and psychological support" - Ulrika Kriecbergs
      •   "Support for the care team" - Danai Papadatou
      •   "Research in PPC" - Myra Bluebond-Langner
      •    Open Discussion
    • 15.30 - 16.00 Coffee Break
    • 16.00 - 17.00 Working session 3 - Moderator: Boris Zernikow
      Working session 4 - Moderator: Luca Manfredini
                             
      •   4 Presentations
      •   Open Discussion
    • 17.00 - 17.30 Closing remarks
      •   Sheila Payne, Chairman EAPC
      •   Francesco Bevere, Italian Health Ministry (pending)